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Jesy Nelson, SMA

'I want to tell Jesy Nelson, there's hope', says mum of child with SMA

A County Down mother, whose five-year-old daughter has Spinal Muscular Atrophy (SMA), has said singer Jesy Nelson should know "there is light at the end of the tunnel".

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SMA Type 1: What to Know About Disorder Affecting Jesy Nelson’s Twins

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SMA explained: The rare genetic condition affecting Jesy Nelson's twins

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Little Mix's Jesy Nelson says twins may never walk amid rare diagnosis

Jesy Nelson, a one-time member of the British girl group Little Mix, is opening up about the rare genetic condition her children are facing.

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Jesy Nelson issues update on twin girls as she admits it's a 'long way to go'

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Jesy Nelson shares update from hospital as she reveals she is fighting for SMA1 screening at birth after her twin' diagnosis because early treatment helps to prevent severe muscular disease

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Jesy Nelson's twins' condition explained as star shares signs that were 'dismissed'

She added: “They will be disabled. The best thing we can do right now is get them treatment and just hope for the best.”

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Jesy Nelson says doctors initially dismissed her fears for twin babies

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Jesy Nelson says doctors initially dismissed her fears about her baby twins not hitting milestones because they were born prematurely as she opens up on the 'most heartbreaking time of my life'

The Independent on MSN

What is spinal muscular atrophy?

Spinal muscular atrophy explained after Jesy Nelson reveals her twins’ diagnosis - The singer shared an emotional update about her twins’ health on Sunday and that ‘time is of the essence with this di

Healthline

What Is SMA Infusion Therapy? Costs, Treatments, and More

Infusion therapy for spinal muscular atrophy (SMA) involves the use of medications delivered via needles or catheters. It functions to help manage symptoms and prevent progressive weakness and deterioration of your skeletal muscles. Oral therapies, such as ...

Medical News Today

What to know about spinal muscular atrophy (SMA) type 3

SMA type 3 is a hereditary disease that affects motor neurons. People may also refer to it as Kugelberg-Welander disease. Symptoms usually begin after 18 months of age. Children with SMA type 3 can walk independently but may have difficulty doing so.